Caregiver-related challenges faced by caregivers of children aged 1-5 years with Sickle Cell Disease at China-Uganda Friendship Hospital, Kampala District. A cross-sectional study.
DOI:
https://doi.org/10.51168/kcrpg848Keywords:
Caregiver challenges, Sickle Cell Disease, emotional stress, financial hardshipAbstract
Background
The study aimed to identify the caregiver-related challenges faced by caregivers of children aged 1-5 years with Sickle Cell Disease at China-Uganda Friendship Hospital, Kampala District.
Methodology:
The study used a descriptive cross-sectional design to collect data at one point in time. It was conducted at China-Uganda Friendship Hospital, Naguru, Kampala, a public hospital providing specialized sickle cell services. The study targeted caregivers of children aged 1-5 years with sickle cell disease. Using Krejcie and Morgan’s table, a sample size of 40 caregivers was selected through convenience sampling. Data were collected over four days using a semi-structured questionnaire. Data were analyzed using descriptive statistics in Microsoft Excel, with ethical approval and informed consent obtained.
Results:
The study involved 40 caregivers, of whom 21 (52.5%) were female and 19 (47.5%) male. Most respondents were aged 29-39 years, accounting for 23 (57.5%), followed by 10 (25%) aged 40-49, while only 7 (17.5%) were aged 18-28 years. More than half 22 (55%) knew common sickle cell crisis triggers, mainly cold exposure 10 (45.5%). Most caregivers 32 (80%) always felt stressed. Half of 20 (50%) could not afford treatment, and 27 (67.5%) reported hospital visits affected their work. Partners supported care in 24 (60%) cases.
Conclusion:
Caregiver-related challenges included emotional stress, financial hardship, and disrupted work schedules caused by frequent hospital visits.
Recommendation:
Caregivers should seek guidance from health workers on home care and complications, and adhere to follow-up visits and treatments.
References
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Copyright (c) 2026 Shamillah Katusiime, George Masete, Hasifa Nansereko, Jane Frank Nalubega, Immaculate Prosperia Naggulu, Francisco Ssemuwemba (Author)
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